Our story
Chatting mothers exchanging stories about how they discovered their unborn or newborn child lives with Down syndrome brought about huge realization that things can be done better.
In early 2019, mums from French-speaking Switzerland decided to pool their resources, ideas and time to create a suitcase and ‘premiers-pas’ was born.
Parents’ needs
Any birth represents a big change in a family, the announcement of Down syndrome is often reported as being emotionally heavy. Shortcomings by the medical profession in the conditions and content of the announcement and recommendations are common.
Difficulties may arise in the support of the child, in regards to the family and friends, financial support, and more. The need for information is important and although there are many resources, it is sometimes complicated to find reliable informations. Exchanges and support with other parents are often requested and appreciated by families. We’ve been there and know how it feels!